![]() ![]() A woman in her thirties (although she always refers to herself as a girl) is stricken with a photosensitivity so extreme that there are only two sufferers at this level in the entire UK. This should have been a really interesting story, and that is why I picked it up. But a pseudonym for reasons of privacy in a straight non-contentious memoir. I just wonder if there isn't some mental ailment of wanting extreme privacy? I'm probably adding two and two and getting five here, but. She says her friends have drifted off partly because she lives in such an isolated place. She does everything she can to keep out the light but refuses to change her life to where she wouldn't need to (like moving to where there is less daylight as I've written below). She absolutely refuses to consider various doctor's opinions that her disease is psychosomatic. ![]() ![]() She shrouds herself in black, travels in a car that has a lightproof 'tent' inside and goes out only in the gloom to protect her skin. I read that the author's name is a pseudonym to protect her privacy. And God said, "Let there be light" and she the author said, "No!". I'm not saying this is conscious, but a physical disease that is so extreme but tests completely normal is. ![]() Whether it was her husband, doctors, councils, she wanted control over everything. Further Update I can't get this book out of my head. ![]()
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